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Community-based participatory research in a large cohort study of chronic diseases among Alaska native adults

TitleCommunity-based participatory research in a large cohort study of chronic diseases among Alaska native adults
Publication TypeJournal Article
Year of Publication2010
AuthorsRedwood, D, Lanier, A, Kemberling, M, Klejka, J, Sylvester, I, Lundgren, K
JournalProg Community Health PartnershProg Community Health Partnersh
Date PublishedWinter
ISBN Number1557-0541 (Print)<br/>1557-0541 (Linking)
Accession Number21169710
KeywordsAlaska/epidemiology, Capacity Building/organization & administration, Chronic Disease/ ethnology, Cohort Studies, Community-Based Participatory Research/ organization & administration, Cooperative Behavior, Humans, Indians, North American, Information Dissemination, Inuits, Patient Selection, Prospective Studies, Research Design, Risk Factors
AbstractBACKGROUND: In 2001, the National Cancer Institute (NCI) funded a project to develop methods to recruit American Indian and Alaska Native (AI/AN) adults for a prospective cohort study of chronic disease risk and protective factors. OBJECTIVE: We describe how the use of community-based participatory research (CBPR) principles led to more effective study design and implementation in a study in Alaska. METHODS: CBPR elements included collaboration between researchers and tribes at all stages of the project, capacity building through training AI/AN staff in research methods, and knowledge dissemination through presentations, newsletters, and individual and community health feedback based on results of the study. RESULTS: Between March 2004 and August 2006, 3,821 AI/ AN adults from 26 Alaskan communities enrolled in the study. Retention in the study is high, with over 88% of participants successfully completing a 2-year follow-up questionnaire. CONCLUSION: CBPR methods have facilitated effective development of study methods, recruitment and retention. Efforts are on-going to continue work with this unique AI/AN research participant community.
Ethno Med: