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African American Client Satisfaction With Hospice: A Comparison of Primary Caregiver Experiences Within and Outside of Hospice

TitleAfrican American Client Satisfaction With Hospice: A Comparison of Primary Caregiver Experiences Within and Outside of Hospice
Publication TypeJournal Article
Year of Publication2013
AuthorsReese, DJ, Smith, MR, Butler, C, Shrestha, S, Erwin, DO
JournalAm J Hosp Palliat CareAm J Hosp Palliat CareAm J Hosp Palliat Care
Date PublishedJul 8
ISBN Number1938-2715 (Electronic)<br/>1049-9091 (Linking)
Accession Number23838454
AbstractThis study, conducted within a larger participatory action research project, explored satisfaction with end-of-life care among African Americans in a rural southeastern community. Researchers collaborated with practitioners and the African American community, conducting qualitative interviews with 1 African American hospice patient, 9 primary caregivers of terminally ill patients within hospice, and 10 family caregivers outside of hospice. Results indicated a more positive experience for hospice patients, and that most nonhospice participants preferred hospice after learning about it through the study. Participants made recommendations for public information efforts, the referral and intake process, and developing a relationship with the African American community. Implications for practice are to include the reasons found for African American preference for hospice in public information sessions with the African American community.
Short TitleThe American journal of hospice & palliative care
Alternate JournalThe American journal of hospice & palliative care
Ethno Med: